NHS England is to more than double funding to children's hospices following a social media campaign by a palliative care charity.
Together for Short Lives #fundnotfail
campaign launched in summer 2018 to call on the government to increase the children’s hospice grant and provide parity with adult hospice funding.
Last month NHS England announced
that the grant will be increased, from £11m to £25m a year.
During Together for Short Lives
’ campaign more than 6,500 people signed a petition that was delivered to 10 Downing Street calling for an increase in children’s hospice funding.
Social media activity using the #fundnotfail hashtag on Twitter included regular video updates
on the petition's progress.
Campaign also received MP backing
In addition, the campaign received the support of MPs, including Labour’s Sandy Martin and Conservative Sir Peter Bottomley, who signed an early day motion
calling for an increase in funding.
“This is a very welcome boost for children’s hospices which provide such crucial care and support to seriously ill children and their families across England," said Andy Fletcher, Chief Executive Officer of Together for Short Lives.
“We know that the number of children with life-limiting conditions is growing and the care and support they need is increasingly complex. I am delighted that NHS England has listened to what we have been saying for some time about the gap in funding for local children’s hospices, which offer a real lifeline, providing vital care and support for families providing 24/7 care.”
Kirsty Murray, whose daughter Ella died from a rare genetic disorder, was involved in the campaign. She said: “I am thrilled that we have been able to make a difference to all the children and families that use hospices and it is a testament to all those that work so hard to provide care and respite around the clock whilst supporting families and helping them to create such important memories.”